****I posted this to FB on December 15th, hours before learning more about my dad's condition. I was told to write down what we are going through. I had done some already, so these first several posts are from that. By the time I posted this, it had become clear to me that people understood that "something" was wrong with my dad, but not "what". Indeed, the information we pass along is fragmented, because we are, ourselves, learning as we go. As of this day, we knew that my dad had an MND... a motor neuron disease. This was how I expressed that to friends and family.****
December 15th:
It is sometimes hard to explain what an MND is in simple terms. Days like today, I am too emotional to put it all into words anyway. So, if you find yourself wondering what is happening to my dad, think about Stephen Hawking. *That* is what is happening. It is a disease affecting specifically the motor nerves. Whether or not it is specifically determined to be ALS, *that* is what is happening in his body. It is closing in on him. This is why his body is 'stopping' on itself, even though he is fully mentally capable and will remain so.
MND's are progressive and incurable. Eventually, his lungs will quit breathing. This is not me being pessimistic. This is fact. He already struggles with breathing now, which is one more reason we are all so affected and scared. The thing is, my dad doesn't have Stephen Hawking money. (ETA: Hawking has a slowly progressing type of ALS which contributes to his shockingly long life. I did not know that at the time of posting this. My apologies.) We are all dedicated to figuring out how to give him the best care we can, though. Count on that.
God is big. He is mighty. He will see us through. That said, we are going to need all of the love and care we can get - but especially my parents. Don't talk about them: talk *to* them. Show them love and grace, even as you pray for love and grace on their behalf. This is a stressful, exhausting, overwhelming, and lonely time. May the Lord get the glory in all things.
I was diagnosed of ALS/MND in 2020. I had severe symptoms ranging from shortness of breath, balance problems, couldn't walk without a walker or a power chair, i had difficulty swallowing and fatigue. I was given medications which helped but only for a short burst of time, then i decided to try alternative measures and began on ALS Formula treatment from Dr James Ehimare herbal centre, It has made a tremendous difference for me contact him via email (jamesherbalformula@gmail.com ). I had improved walking balance, increased appetite, muscle strength, improved eyesight and others. Don't hesitate to reach him call/whatsapp +2349057856543
ReplyDelete